So the story I told last night happened again, minus the tongue.
When I woke up to pump at 3:00am I called to check on Eli. Tiffany said he was doing well they were pulling 15 cc’s of fluid (3 teaspoons and hour) things looked good….1 step forward. However the Dialysis machine was beginning to clot again, they were going to try to get to 7:00am and then replace the machine,( this means the conflicting Medicine that is hard on Elijah’s heart) but at 7:00am the change had to happen…. 2 steps back.
I couldn’t believe this, it had only been 12 hours this time. Again I prayed from 3am until 6am when Ron and I came back to the hospital to be with E. I prayed “Jesus I trust you, is this what has to happen, please comfort Elijah, we are at your mercy, I love you and thank you for all that you have given me, I’m not afraid, I trust you, please do what is best for my son, I love you, I love him, is he going to get better, please don’t let this brave little fighter suffer, he will fight it is how he was made, let him know it’s ok to stop, only you know, you are in control, I trust.” Prayer like this happened for three hours.
We got here and he did it again without even waking up this time. All I can say is this little boy just wont stop!!! His heart rate stayed good, he responded instantly to the blood pressure medicine. Each time we have switched the machine he has done it easier, or we have all gotten better about how to take care of Eli and what he likes, and can withstand.One of the doctors even commented on how on top of everything I am. Knowing his medicine, the rates he gets it, the order we did it yesterday, how he responds, she said I was on top of everything.
I wonder how is Elijah doing this? I am in awe! I want him to be at peace with whatever is good for him. He truly is a brave little soul, he is a braver soul than me!
Elijah with his comfy caterpillar, and new bracelet (it finally says his name).