So after I posted this morning Eli gave us another scare. Well I shouldn’t blame E for this one but either way it was frightening.
Elijah’s Dialysis machine had to have a filter change meaning it was catching clots from Elijah. So to do this they have to give E a medication that makes him drop his blood pressure to extreme lows, and then counter act this with other medicines. This was all done after E had to be shocked this morning. Dr Christensen is here with us again and told Ron and I that E might not make it through this. His heart is just to week. We had an hour with Elijah before this change over happened. My parents had just walked in so to come into this situation was scary and they were sent right out to the waiting room. Ron and I both held one of Elijah’s hand, I rubbed his tiny hand and he was wide awake looking at us. What is he thinking? Does he know? Is he scared? Both Ron and I laid our heads next to him and told him (without even knowing what the other parent said at the time) Eli if you can’t do it we understand, we love you and understand if you can’t fight anymore, if your to tired we know, we are so proud of you, we love you, it’s ok to let go.
They started the change Ron held his hand I rubbed his head. I lay my head next to Elijah’s. I close my eyes and I pray “This is your will not mine I trust you to do what Eli needs” over and over and over. The song “Trust” by Matt Hammitt is on replay in the back ground. Eli turns bright red they push meds, 20 minutes later it’s over. Elijah did it, not only did he do it, but he did it easier than he had done yesterday. Too top it off he stayed awake the whole time and had his eyes open and when Dr Christensen came to say he did it, Eli made it through Elijah stuck his tongue out right on cue. We all laughed it was AWESOME!!!!!