So if you haven’t heard here is the update. At 10:20 last night Elijah’s heart stopped beating. Even though he was struggling to stabilize, this was still a complete shock to everyone involved. About 20 minutes before this event Elijah had a Eco cardiogram which indicated good heart function, so no one could understand where the stopping of his heart came from. We had a team of about 15 doctors and nurses at bedside already so the staff started chest compressions immediately so the ECMO team could get here and get him hooked up.
This is where we sit this morning we are waiting on information on Elijah’s head ultrasound, anytime a baby has to have chest compressions there is risk involved. Next we are starting Dialysis to get the extra toxic fluid off Elijah. Lastly we let Elijah rest and not put his little body under any stress.
Elijah is moving all his limbs he is opening his eyes a lot and makes eye contact. He loves when I kiss his head and sing to him he even smiled a little after I sang one of his favorite songs “The Redeemer” by Sanctus Real. The staff is cautiously optimistic about all his movement today.I know my job today is to be Elijah’s momma and try to comfort him, tell him how amazing he is and how much he is loved not only by me but by everyone who is following him, praying, and loving. I know your heart is breaking for all of us and we appreciate this more than words. I would love everyone to go back and read the brave little soul blog again.
One day maybe I can write in greater detail about what last night was like for all of us but know every single person here said it was an awful night. For Ron and myself it was truly the worst day of our entire lives. If you know Ron know well you will know he already lost one newborn at a few hours old, but at least Madison went relatively peaceful. We have told Eli that if he is too tired we understand and I have changed my prayers to God to make sure he knows I trust in him and his plan for all of our lives. I may not understand why, but trust God to lead us all and teach us in this part of our lives. I know I never thought I could be so strong and can only attribute this to God working in me, and I know he is still working in Ron and Elijah also.