One step forward two steps back.

Hello everyone, sorry it took so long to update today. The internet has been down all day.

Lets get to the Eli report. Eli is on a hamster wheel he can’t figure out how to get off of. He is trying so hard to do all the things he needs to do, but in doing this it is causing other issues with his little body. His fluid retention is really the “bad” thing right now. Eli is just swelling more with each passing hour. His body just can’t kick the fluid. In fact his blood pressure in back to being unstable and one of the things that makes him feel better is you guessed it “more fluid”. His lungs are filled with fluid as well as everything else and he isn’t peeing much.

Eli was scheduled for surgery tomorrow but because of his unstable nature we have had to postpone in attempts to get Elijah stable.  They have reset his surgery date for May 3rd, which we know seems so far away.

I am having a hard time figuring out what to say today. I feel like I am living on my knees. As I write this today tears are streaming down my face and I find myself in quite contemplation. What is next? What can I do? Please God hear my cry! Our view from Elijah’s room is breath taking and I know this has come from you, I feel peace.

All the kids have come and seen Elijah, they are doing great and want to send a special thanks out to my parents for their amazing devotion and unconditional love to myself and all the grand children. Knowing you are so wonderful has given me such peace as a parent who is torn. To Ron’s parents who have come to the hospital everyday to give Ronnie and I support. Even if it feels like their is nothing they can do except sit and stare at monitors. To my sister who came and stayed up all night taking shifts for support and a shoulder. To all the medical staff, thank you! What a difficult delicate job you have and you never stop. To Allison and Meredith two of our warrior nurses, who never leave your side and work all day to save our boy. Meredith was with Eli his long night, and worked 12 hours without breaks eating at Eli’s bedside and comforting Ron and I as she went. Allison who has made me feel like she is our family. Explaining everything working nonstop talking and loving Elijah, hugging me, laughing with us, singing with me to Eli, Thank you. To  Everyone your emails, gifts, flowers, calls, messages, thoughts and prayers have not gone unnoticed. I personally read everyone of them and tell Elijah, as I read them I cry, I laugh, I feel overwhelmed with love and support!!!! I am so thankful to all of you, please do not give up on us we are fighting, I promise.

I will leave you with some good moments of the day. Eli meeting his brother and sisters again!

 

 

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8 Comments

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8 responses to “One step forward two steps back.

  1. Kim

    Hi There.

    You don’t know me. I am a friend of Dave Putnam. He has been keeping us abreast of your situation. Although we have never met I feel compelled to write to you regarding your situation. Our family is a prayer filled home and I want you to know that God is here for you.
    After reading your latest blog, I just felt God leading me to write to you and hope that my words can help find you comfort. I can’t say that I know what you are going through, I don’t know what it must feel like to be walking in your shoes. I can’t pretend to even understand why God has sent you on this journey. But I CAN tell you…God is right beside you. He is seeing your struggle. He doesn’t want you to worry, he has great plans for Eli and for all of your family, I don’t know what those plans are, but I just feel a peace in my heart that tells me… “don’t worry…I am here”
    You said you are on your knees…..I am so thank-ful that you are realizing the importance of that. God will meet you in your time of need. Just give thanks for the small miracles and even in the bad moments, lean on Him. He wants to be there for you and all you have to do is ask. Don’t stop, he is never too tired to hear your needs.
    I (we) will be continuing to pray for you. Dave was here last night as we had a group get together with all of our dear friends. Your family was the topic of conversation in that we are all reaching out with hugs and prayers to you! God is in control and let not your heart be troubled.

    1 Peter 5:7
    “Give all your worries and care to God for her cares about what happens to you.”

    Prayerfully
    Kim

  2. Kim

    1 Peter 5:7
    “Give all your worries and care to God for he cares about what happens to you.” **

  3. Nicky

    Have been keeping updated on your situation through David Putnam a friend of mine, even though we don’t know each other I wanted to let you know prayers are being sent your way. My heart goes out to you and your family and sweet Eli. Continuing to pray for you all everyday.
    Take Care

  4. Sherrie Nunheimer

    we r praying for you. God has a plan. its hard to know what it is sometimes but feel his love!! We love you and pray for the best for all of you.
    Blessings Sherrie Nunheimer

  5. Elaine/Dic

    still praying…….

  6. Norm and Carol Eastman

    Tera and family we love you and feel your concerns. As grand parents we feel for your parents too. I’m sending hugs and kisses from an old friend and almost family. Gram and Grandpa Eastman

  7. Lex lex

    I love him I am in the last pic! With Tera!

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