Hello everyone, sorry it took so long to update today. The internet has been down all day.
Lets get to the Eli report. Eli is on a hamster wheel he can’t figure out how to get off of. He is trying so hard to do all the things he needs to do, but in doing this it is causing other issues with his little body. His fluid retention is really the “bad” thing right now. Eli is just swelling more with each passing hour. His body just can’t kick the fluid. In fact his blood pressure in back to being unstable and one of the things that makes him feel better is you guessed it “more fluid”. His lungs are filled with fluid as well as everything else and he isn’t peeing much.
Eli was scheduled for surgery tomorrow but because of his unstable nature we have had to postpone in attempts to get Elijah stable. They have reset his surgery date for May 3rd, which we know seems so far away.
I am having a hard time figuring out what to say today. I feel like I am living on my knees. As I write this today tears are streaming down my face and I find myself in quite contemplation. What is next? What can I do? Please God hear my cry! Our view from Elijah’s room is breath taking and I know this has come from you, I feel peace.
All the kids have come and seen Elijah, they are doing great and want to send a special thanks out to my parents for their amazing devotion and unconditional love to myself and all the grand children. Knowing you are so wonderful has given me such peace as a parent who is torn. To Ron’s parents who have come to the hospital everyday to give Ronnie and I support. Even if it feels like their is nothing they can do except sit and stare at monitors. To my sister who came and stayed up all night taking shifts for support and a shoulder. To all the medical staff, thank you! What a difficult delicate job you have and you never stop. To Allison and Meredith two of our warrior nurses, who never leave your side and work all day to save our boy. Meredith was with Eli his long night, and worked 12 hours without breaks eating at Eli’s bedside and comforting Ron and I as she went. Allison who has made me feel like she is our family. Explaining everything working nonstop talking and loving Elijah, hugging me, laughing with us, singing with me to Eli, Thank you. To Everyone your emails, gifts, flowers, calls, messages, thoughts and prayers have not gone unnoticed. I personally read everyone of them and tell Elijah, as I read them I cry, I laugh, I feel overwhelmed with love and support!!!! I am so thankful to all of you, please do not give up on us we are fighting, I promise.
I will leave you with some good moments of the day. Eli meeting his brother and sisters again!