Update on our little fighter.
With all the struggles that Eli went through over the last 48 hours we have found out new information. Unfortunately Eli has suffered a brain bleed on top of everything. It is considered mild a level 1 but this makes for more testing and stress. He has been on a EEG all day and what we know is he is not suffering from seizures from the bleed and the doctors also do not see anything else as well. However to make sure he has no permanent damage he will also be receiving a MRI on Sunday.
The good news would be levels are trending down still the Lactate level is down to a 9.8 and everyone is happy for this. Eli is carrying a lot of fluid on his body which is to be expected but some is collecting on his lungs now.
We need to continue to receive support for Elijah and that he continues to stabilize and pass his daily tests and get good results, as his surgery is still scheduled for Monday.
I will leave you with a song that I sang all night to Eli and it puts everything into perspective for me.
Lest I’m tempted to forget, I’ll tie your love around my neck, I’ll write your words upon my heart Lord I wont forget how good you are. I’ll dwell upon your faithfulness I’ll rest within your promises and when I’m walking through the dark Lord I won’t forget how good you are. I will trust, I will trust you.
2 responses to “Little Fighter”
Chris, my nice, Kallie, has this defect as well. They didn’t find it until she was nine months old. She and her parents came to visit us in Chicago where we now live. She developed a cough and they took her to the er. Long story short, they rushed her to children’s hospital in Chicago and she underwent several open heart procedures. Her family was forced to move to chicago quickly so the surgeons here could have the time they needed to repair the defect . It was an amazing time and a very hard one to go through. It was harder to fix the problem because it wasnt caught right at birth. Kallie is doing great and still has some surgeries ahead of her, but you world never know that she has had such an experience. She is 5 1/2 now and in kindergarten. My prayers are with you and your family during this hard time. Eli will be in my prayers and thoughts.
I appreciate the updates. It helps me to see Gods hand in all of this. I am praying for you all.